Event Registration

This event benefits the Acid Maltase Deficiency Association (AMDA). It was formed in 1995 to assist in funding research and to promote public awareness of Acid Maltase Deficiency (also known as Pompe Disease). Pompe Disease is one of a family of 49 rare genetic disorders known as Lysosomal Storage Diseases or LSDs.

At one time Pompe Disease was a death sentence. Now, while there is a treatment there is still no cure. Each year the AMDA solicits Research Grant applications from researchers who are dedicated to improving the lives of Pompe patients. With the support and advice of a Review Committee of experts from around the world, the AMDA evaluates all applications and selects the Project that will have the greatest impact on Pompe patients.

We could not do any of this without your help.

Thank you!

For more information:
Jorge.Hinojosa@bexarconcrete.com
or 210-497-3773